Lifestyle & Trends - Community

Igniting the conversation about rare diseases

Each year, people across the world are invited to join together to raise awareness about rare diseases. Unlike more common conditions such as diabetes and breast cancer, many of these diseases, as well as the people affected by them, are not recognized by their own awareness initiatives throughout the year.

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Cycling to help stop diabetes

Tour de Cure is a fun way to get out with your family, friends or co-workers and has routes designed for all riders - from 5-mile family rides to 100-mile century rides. It is a ride, not a race, so participants are encouraged to go at their own pace.

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Five reasons Asian Americans should get tested for hepatitis B

More than 1 million Americans have a lifelong, or chronic, infection of hepatitis B. This includes one out of every 12 Asian Americans. If you or your parents were born in Asia or the Pacific Islands, the Centers for Disease Control and Prevention (CDC) recommends that you get tested for hepatitis B.

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Rare Disease Day 2013: Maintaining bone health in people with multiple myeloma

In honor of the sixth annual Rare Disease Day, celebrated on Feb. 28, it is important to drive awareness about some rare cancers that are many times undiagnosed until the cancer has already spread. One particular cancer, multiple myeloma, often goes undiagnosed until the disease has spread to the bone.

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Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond

Getting a diagnosis is just the first of many challenges patients with rare diseases - and their caregivers - face.

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